Anna Owen

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Flash back to right before Josie’s 3rd birthday when she first started walking

It’s hard, but it’s worth it

Two weeks to flatten the curve! Lollll remember that??

What a dork lol

Two sleeps until she turns five , three sleeps until she has surgery number 11

It’s your birthday, baby!! Five years of loving you and I can’t even believe it!

When she saw the phone in my mouth, she said “ewww” 😂

And she just finished prek

Not the news we wanted, but not surprising If you scroll way back on my page from last summer, you’ll see a time at Six Flags when Josie’s trach came out for houuuurs. It made us question why she still has one if she was perfectly fine without it at the park. Well…after speaking to our ENT, he confirmed that her airway is still way too small to function long term without the help of a trach. If we were to prematurely get rid of her trach, she could develop severe obstructive sleep apnea where her airway would be blocked while she was sleeping. He also officially diagnosed her with laryngomalacia and tracheomalacia where her lungs and trachea collapse in on itself if not propped open with the trach. Fun. We have known for a while that it was an issue, but we’ve officially put a name to it. Long story short, she will have this trach for a whiiiiiile. It’s way easier to intubate for surgery if she has a trach, and she has several surgeries left in her life. Therefore, we will stay the course as is.